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so far so good; a survivors story

leiomyosarcoma too far along?

From: Barry
Remote Name: 24.158.19.229
Remote User:
Date: 07 Apr 2005
Time: 17:11:59

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Our dad is about the healthiest- looking 70-year old anyone I know has seen. He looks about 45, is very active, and has more friends than I do. For 9 years he complained of stomach pain and heartburn that his doctor diagnosed as a hiatal hernia. Finally, after a bout with pnuemonia, a new doctor did an endoscope and looked down his trachea. An LMS mass was pushing his stomach closed. He is strong and healthy enough to live through this surgery. But they will remove his spleen, half of his stomach, and the tail -end of his pancreas! I feel that we should prepare for a short life after this surgery, can anyone really expect to fully recover from this big an extraction? My love and hope goes to everyone posting here, Barry Pirkola, Duluth MN

From: Helen
Date: 01 May 2002
Time: 07:53:27
Remote Name: 68.80.34.188

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My husband was diagnosed with lms one year ago on our 18th wedding anniversary. We went from it being a bruised muscle to one of 15 people in a study at Penna Hospital in a matter of weeks. He has undergone chemo, radiation and surgery. Our Doc's are the best and the Lord has given us much strength and guidance! He is now back to work and we're through the first check-up successfully (praise God). It's time for check-up #2 and nerves are on edge...but we keep the faith. Please keep all cancer families in you nightly prayers and remember to pray for our Doc's too. This is truly a battle for life! Dr. Staddon is wonderful at the Pennsylvania Hospital, specializes in LMS, and his study is using drugs to improve blood status so stronger chemo can be used to attack this monster... Good Luck to you all and Godspeed!


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